Ok, so I don't want this to turn into a rant. At least I am trying to stop that. I needed to write this post after reading some comments the other day and it made me just think about the ill-informed and their posts around things such as autism.
This may be a question you are asking now, it's certainly a question I ask myself. The thing is, I wanted to air a few things. I'm trying hard not to make this a rant post but there may be some. Just pre-warning.
So, over time there have been a few things I have heard. There are a few that I will address a little further down, but the first one I wanted to talk about is something I read as a reply to a Facebook post the other day.
So, the other day. Some I know put up a post on Facebook saying that his eldest had just been diagnosed with ASD. Now, they had said for some time that they believe he was on the spectrum but finally, they got a diagnosis.
This is fantastic. They can now move forward and get help as and where they need it. They can get to understand more about their son and it really does make that much difference. They were happy. All were happy, including the post I am going to pick on. It's just, this one particular post got my back up.
The comment in question was :
My neighbours boy is fully autistic and my nephew has Asperger's, your not alone
This is an exact quote, spelling mistake and all. I'm not sure if you can spot it, can you? Ok, we could talk about Asperger's and the fact that these days its all ASD. The real issue I have with this quote though is the reference to 'fully autistic'.
I was wondering what 'fully autistic' means. Now I did not reply, I don't know this person and I didn't want to start going off on one (as my wife told me I would have). This is no good for anyone. My point being is - what an ill-informed thing to say.
What do people that have this perception think? If a child is diagnosed with ASD, regardless as to if they are high functioning or not - they have autism. There is no 'fully'. See, I'm ranting now... but the thing is, people such as these are the reason we have to fight for our children to get good jobs. Our kids have to prove themselves above and beyond.
So, there are more. Things that I have heard over the past few years. For example, I was talking to an older lady a few months ago. I was explaining to her how my son was non-verbal and said he had autism. The said to me that there was no reason to worry as god would come down soon and cure him? At that point, I realized that she didn't really understand - you may have read an earlier post I did which really came from this conversation called My son is not broken.
There are other encounters I could go on about. It could turn into a right rant, but, at the end of the day its all down to not understanding. If people were educated about what autism is, then maybe they would know that there is no 'fully autistic'. Being on the spectrum is being on the spectrum regardless.
My son was diagnosed with ASD. He is not broken. We would not change him as we love him and his great personality as it is. Yes, there are challenges - though these are more because of his learning disability rather than ASD. I like to try and give enlightenment to the ill-informed, many of them think they are well informed because of one reason or another but they have to be willing to learn. If not, then I have to just walk away.
Have you encountered someone who was ill-informed like this? Have some opinion or another? Then please leave a comment below.